Migraine is a devastating neurological disease that affects approximately 15% of the world’s population, yet migraine remains largely misunderstood.
Migraine Awareness Month is here, and Avulux is excited to share a curated collection of valuable resources for individuals seeking information and support related to migraine. We've scoured the landscape to bring you a range of organizations dedicated to shedding light on this often-misunderstood neurologic disorder. Get ready to embark on a journey of discovery, empowerment, and connection as we explore some of the fantastic organizations you can turn to for knowledge in this movement.
Vestibular Disorders Association (VeDA)
Vestibular migraine leads to episodes of dizziness characterized by sensations of rocking, spinning, floating, swaying, internal motion, and lightheadedness. These episodes typically occur without warning, although they can be brought on by stress, sleep disturbances, skipping meals, dehydration, or other illnesses. Approximately 40% of migraine patients experience some accompanying vestibular syndrome that involves disruption in their balance and/or dizziness at one time or another. If you, or someone you know, experiences vestibular migraine, VeDA is your go-to resource. With one-on-one patient support, informative articles, and a community of individuals who understand your journey, they offer the support you need to navigate this specific type of migraine. Check out the VeDA website to find helpful resources related to vestibular migraine, you’ll even find a few migraine diet recipes from The Dizzy Cook!
American Migraine Foundation
For those living in the United States, the American Migraine Foundation is your guiding light. With a wealth of resources, including research updates and expert insights, they empower individuals to reclaim their lives from the clutches of migraine. Find support through their Facebook Group, Move Against Migraine, where they offer professional advice, treatment options, information on clinical trials, and other helpful resources.
Association of Migraine Disorders
Advocating for change and promoting research breakthroughs, the Association of Migraine Disorders is committed to ensuring migraine patients receive the care they deserve. Through their initiatives, they aim to educate, raise awareness, and empower individuals to advocate for themselves and their loved ones. Show your support by participating in their Shades for Migraine campaign, where you can help to spark conversation around migraine and educate others.
Migraine Again is run by people working and living with migraine, who know first-hand how it feels to seek support and empowerment in your migraine journey. Their global platform serves as a beacon of hope for individuals worldwide. Benefit from their expert knowledge, engage with a vibrant community, and discover practical strategies to manage your migraine effectively. Join the Daily Migraine Facebook Group where you can find support, information and helpful advice from other people living with migraine.
Chronic Migraine Awareness
Chronic migraine is defined as experiencing 15 or more headache days with at least eight days of migraine symptoms per month for at least three months. Between 3% and 5% of the U.S. population suffers from chronic migraine. Living with chronic migraine requires a unique approach, and Chronic Migraine Awareness is here to support you. They offer understanding, empathy, and a platform for those living with chronic migraine to share their stories, find validation, and access vital resources tailored to their specific needs. They have numerous Facebook Groups that welcome different situations. Find one that is right for you!
Canadian Migraine Society
Canadians, rejoice! The Canadian Migraine Society has your back. From the East Coast to the West, they provide a network of understanding individuals, comprehensive education, and advocacy efforts to ensure better recognition and treatment options for migraine across the country. Visit the Canadian Migraine Society website for useful information on the different types of migraine and what symptoms they are associated with, and connect with others through their support groups.
Seeking practical tips, evidence-based information, and a compassionate community? Migraine Canada’s dedication to empowering individuals with migraine shines through in their five pillars: Awareness, Education, Support, Advocacy and Research. They have an extensive resource library and supportive network of people living with migraine. Don’t forget to listen in on their Migraine Talks Podcast, where you’ll hear some great advice around managing your migraine in different situations.
Coalition for Headache and Migraine Patients (CHAMP)
The Coalition for Headache and Migraine Patients (CHAMP) is a powerful force amplifying the voices of migraine patients. By bringing together advocacy groups, they strive to improve access to quality care, advance research initiatives, and foster understanding among the public. Having a healthy lifestyle when living with migraine is extremely important. Visit the CHAMP website for some healthy habits you can pick up on.
Migraine Australia provides a haven for individuals seeking guidance, connection, and expert advice. With personal stories, resources, and a compassionate touch, they're dedicated to making a difference in the lives of Australians living with migraine. Join a support group that will allow you to ask questions in a safe space and help you along your migraine journey.
Migraine Foundation Aotearoa New Zealand
Migraine New Zealand supports the migraine community across New Zealand, focusing on education, advocacy, and resources to improve understanding, raise awareness, and empower individuals in their migraine journey. Join their support group and sign up for the newsletter to connect with others in New Zealand living with migraine.
If you're seeking support and valuable resources, these organizations provide insights, information, and a wealth of tips to help you navigate your migraine journey. We encourage you to join us in challenging the stigma surrounding migraine, educating the public, and empowering individuals to take control of their lives. Embrace this opportunity as a gateway to hope, understanding, and a renewed sense of strength.
Connect with the Community
Throughout Migraine Awareness Month, use the hashtags #LightsOutMigraine and #MHAM on social media to share your experience with migraine and light sensitivity throughout the month of June!